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A DiabetesTeam Member asked a question 💭
Pueblo, CO

I never realized until my friend's daughter brought it to my attention, just how similar presenting Diabetes and POTs are. I have begun doing research.

January 22, 2025
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A DiabetesTeam Member

Why?

Because the number of people with POTS is only about 0.2% of the general population (so beyond super rare) while the number of people (potentially) with Diabetes is actually as high as 15 or 20% (including the undiagnosed)

Doctors "play the odds" but Whomever this Doc was that made that diagnosis "might" just be an idiot

Looking at the symptoms and average age of onset (females age 15 is the average) I'm not sure "what Doc" would call it Diabetes when these are the symptoms:

Rapid heart rate, heart palpitations
Lightheadedness
Fainting
Headaches
Shortness of breath
Chest pain
Brain fog
Gastrointestinal symptoms
Fatigue
Exercise intolerance
Musculoskeletal pain
Poor sleep

Nothing to do with elevated blood sugar

January 23, 2025
A DiabetesTeam Member

@A DiabetesTeam Member I just don't see how you could misdiagnose those symptoms as Diabetes

I can see calling LADA, Type 2 or PCOS Type 2 at least initially - or any others with blood sugar disorders

But without the blood sugar element, it just can't be any Type of Diabetes - all of them have "abnormal blood sugar levels" as THE KEY symptom

That would be like walking in with a broken arm with a bone sticking out and the Doc calling it the flu

January 23, 2025
A DiabetesTeam Member

@A DiabetesTeam Member POTS or Postural Orthostatic Tachycardia Syndrome is a very rare disease that effects about 0.2% of the population

It occurs most often in Teenage girls but pregnancy, major surgery, major trauma or some other disease can trigger it

It's so rare and unknown that the experts aren't even sure if it's an Auto-Immune disease or if it's just an autonomic nerve disorder or something else for that matter

The symptoms, which I posted a couple posts above look like the symptoms for 1000's of other diseases, deficiencies or disorders

Some patients but not all show the presence of an anti-body in blood tests which is why (they) think it "might" be auto-immune

But how any Doctor could mistake these symptoms for Diabetes and diagnose that is totally beyond anything I can understand

Aside from the "fatigue" which is common with just about every disease out there, there is no "blood sugar" problems in POTS patients, at least not because of POTS as far as they know

January 23, 2025 (edited)
A DiabetesTeam Member

I've never heard of it either.

January 23, 2025
A DiabetesTeam Member

I surmise that she might have both diagnoses, if her doctor is not brain dead.

I am diagnosed with many chronic conditions. Like chronic Lyme's disease, Asthma, COPD, Positional Syncope, Vertigo, Psoriasis, Eczema, Rhumatoid Arthritis, Diabetes, Cancer, constant high level pain (8.5 to 9+), partial Paralysis, continual broken ribs, Parkinson's, and so much more.

But these are just minor irritations and inconveniences. I got this.

Yes, specialists diagnosed some of these things, I diagnosed some then went to specialist doctors, most of these my PCP diagnosed.

I am saying, it is possible and often probable that multiple diagnoses can be present at the same time.

Have a wonderful day.

January 23, 2025

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