Who Has Gastroparesis ? | DiabetesTeam

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Who Has Gastroparesis ?
A DiabetesTeam Member asked a question 💭
posted January 3
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A DiabetesTeam Member

Michelle, I am on Domperidone. I have been for several years. It works fantastic for me. Last year, I ran out of it and I was so ill. I can't worry about the side effects. I have another disease which can kill me as well

posted January 8
A DiabetesTeam Member

I was diagnosed with gastroparesis in 2020. I occasionally take A off an when I'm having a flare. It took me a year of struggling for control to decide I needed more help. I was already seeing an endocrinologist so I asked for his help with the gp. I don't have a severe problem at this time. He helped me get my Vgo insulin patch and my PcP helped me get a cgm, which has really helped me get back my control. My last A1c was 6.9. Back under 7. I get labs at the end of the month, so I'm hoping to drop maybe at least 2 more points. I will probably never be under 6 again. The gp seems to be stable for now, but I still struggle with food. My diet has lots of room for improvement.

posted February 8
A DiabetesTeam Member

My doctors have me taking miralax daily if needed. It helps keep things moving.

posted January 8
A DiabetesTeam Member

Diet and medication. But watch out for pantaprazol, it's meant to be short term only, but they've had me on it for a year and a half. I read that it increases your risk of stroke by 98%. My doctors seem oblivious about this meds side effects. So was I. You can't just quit it, you need to slowly go off it. That's where the doctors should come in handy. BTW, in the ICU they prescribed me PEG to be used every couple of days for the rest of my life. It's an OTC laxative. We all know that laxatives shouldn't be used often, but with gastroparesis it's a different story. Been working wonders for me

posted January 8 (edited)
A DiabetesTeam Member

I occasionally have gastroparesis. So uncomfortable. Nothing helps. I do take pantopropazole and have been taking it for at least 10 years.

posted March 26

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